Best Practices for the Collection and Analysis of Patient Experience Data from Social Media for Patient-Focused Drug Development

It is with great pleasure that as part of Social Media Listening project, our second paper was published in peer reviewed journal “Best Practices for the Collection and Analysis of Patient Experience Data from Social Media for Patient-Focused Drug Development” in Frontiers in Medicine (DOI: 10.3389/fmed.2025.1703923, Jan 30, 2026).

This landmark paper proposes standardized guidelines for Social Media Listening (SML) to generate real-world evidence from patient conversations, capturing authentic insights on disease burden, treatment experiences, and unmet needs, a key for patient-focused drug development. It includes a diabetes case study demonstrating practical application. A vital resource for advancing patient centric R&D, read it open access now (Frontiers | Best practices for the collection and analysis of patient experience data from social media for patient-focused drug development).

This publication will now be followed by an additional tool for the industry that is expected to be finalized shortly and published on our website to support pharmaceutical companies in implementing Social Media Listening (SML).